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Support for endometriosis sufferers
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Marisa
 Feb 11, 08 - 11:18 PM |
Newly diagnosed with Stage II endo
I just wanted to introduce myself and share my story. I have had problems for many years including but not limited to: severe period cramps, heavy bleeding, break-through bleeding, left-sided severe abdominal pain(felt like someone was stabbing me in the ovary), lower back pain and hip pain(let's just say all-over pain cuz that fits better~something always hurts), IBS, chronic fatigue, migraines, carpal tunnel, anxiety and depression, was diagnosed as bipolar but am beginning to realize it was the endo causing the mood swings b/c it was always the week before period, TMJ, chest pains and palpitations, degenerative disc, and I'm sure there are some I have left out. And on Jan. 29, 2008 I was diagnosed with Stage II endometriosis and adhesions. I am in a way relieved to finally have a diagnosis and know the cause of my pain and some of the other issues that I have going on. It's nice to know that I wasn't going crazy and it confirmed that I wasn't a hypochondriac~which my mother called me quite often. I think the worst part is that there are so many things that just aren't right and nobody would listen. I can remember going to one doctor about 7 years ago with my lower back pain and he didn't check into it at all; he just gave me some pain killers and sent me on my way. Anyways, my left-sided abdominal pain started being an every day thing back in July so my doctor referred me to a women's health specialist where they did an ultrasound to find my enlarged uterus and liver. They did some tests on my liver and I guess it is fine; just mildly enlarged. She recommended a diagnostic laparascopy with possible laser ablation of endo and lyesis(removal of adhesions). I had endo on both ovaries and uterus and adhesions were covering my left fallopian tube. She apparently removed it all. She said she thought the cause of my pain being so severe on the left side was a combination of the endo on that ovary and the adhesions on that tube, but I am beginning to wonder. I have been fine up until last night. I started having some pain in the same place again.  The doctor said if the pain came back she was going to refer me to a GI to have a colonoscopy done and I am definitely not looking forward to that. I go back to the doctor on Wednesday to find out what's next for me. Doc had mentioned Lupron but after doing some research and reading others' experiences; I have opted not to go that route. I do know that I want to eat healthy, exercise more often, and enjoy my children while I still can. Thanks for reading my novel! I'm glad I found this forum; there is so much information and wonderful people who know what I'm going through. I will keep everyone in my thoughts and prayers~
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Melissa
Feb 12th, 2008 - 3:20 AM |
Re: Newly diagnosed with Stage II endo
Hello & Welcome! I'm sorry you were recently diagnosed with endo. I wouldn't wish it on anyone. I defin think I agree with the theory that endo is an autoimmune disease/or has something to do with our immune systems because it seems that many women who have endo, also have other immune disorders or other sickness. I would agree with you on avoiding Lupron if possible. I will keep you in my prayers. Melissa |
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SickofEndo
Feb 15th, 2008 - 3:09 PM |
Re: Newly diagnosed with Stage II endo
Please avoid Lupron at all costs. The good results (if any) are only temporary but the side effects could be permanent. Get a second opinion if you have to. The docs don't know how you feel, only you know how you feel and a lot of them get perks for prescribing certain meds like Lupron. Good Luck and keep us posted. You are not alone!! 
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