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Support for endometriosis sufferers
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| Viewing Page 1 of 1 (Total Posts: 8) |
| Author | Comment |
BrandFam
 Mar 11, 08 - 10:19 AM |
When will it get better?
I haven't been on in a week or so. I have been doing okay. No...I am not going to lie. I have been having some really rough days. I have been having cramping, diarrhea, constipation...pretty much you name I have had it. I am so sick of this. I am tired of having one good day a week and the rest being bad days. I am starting to hate my life. It has come to the point where I don't want to go anywhere for fear that I may have an episode. Everyone I know is trying to be understanding but how can they be when I am like this everyday. Sometimes I just want to crawl into a hole and never come out. I go from having extreme constipation to what feels like emptying my bowels in less than a couple of hours and having really bad cramping and feeling like I am going to pass out. It has gotten worse since the surgery. On top of all that my insurance company has decided that since this is a pre existing condition they are not going to cover me for the next year which includes the 15,000 dollar surgery I just had about a month and half ago. When will it end? All I want is to live a normal life. Be able to eat what I want and not have to worry if this is going to make me sick. Be able to enjoy going out and not double over in pain and have to leave because the pain is to much to bear. Sorry so long and for being so negative. But I am just sick and tired of being sick and tired. Can you please prayer that I am able to find the strength to deal with this all, and to not have the negative out look on life that I do right now. |
Marie
Mar 11th, 2008 - 11:06 AM |
Re: When will it get better?
brandfam, I pray that God will lift you up in his arms and comfort you right now by his Holy Spirit because he will take care of you!!! I know sometimes it seems like there's no end to the suffering but I will tell you what helps me the most when I feel that down....Praise/Worship music....In his presence there is Joy in the midst of our suffering and I pray that you will find him in the midst of your suffering!!! In Jesus Name, Amen! sending loving warm hugs your way, Marie |
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Lori
Mar 11th, 2008 - 11:11 AM |
Re: When will it get better?
Hello! Marie and Brandfam, Amen! I agree with Marie-praise music. Target carries alot of the "wow hits" praise music that is very uplifting. I understand. It is so difficult being sick and when it is chronic as this it can get so draining on the body, mind and soul. Hope I believe is the problem when this happens and it happens to all of us. I have to get down on my knees so many times and say to the Lord "Lord I need Hope!!, Please bring me some today" Man is he faithful as the peace and hope "in Christ" is beyond understanding. But those who wait on the LORD Shall renew their strength; They shall mount up with wings like eagles, They shall run and not be weary, They shall walk and not faint. Isiaih 40:31 Now may the God of hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit. Romans 15:13 I encourage you to get out your ipod and your bible and wait on Him. Ask him to bring you this hope as we are too. Heavenly Father, the God of Hope who promises to comforts us. Please bring strength, peace and a reason for living each day with passion for you and in you. In Jesus name, amen. 
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Steph
Mar 11th, 2008 - 11:52 AM |
Re: When will it get better?
Hugs to you! Know that you are not alone. God is always there holding you through the pain. I know it is so very hard to remember/believe this, but try visualizing the Lord wrapping his cloak around you and trust that He is doing just that for you, brandfam. It can be a powerful image! I echo the praise music but I prefer hymns when I'm hurting (a little more soothing compared w/upbeat when I'm feeling fatigued) I'll be praying... God bless, Steph |
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Heather Thompson
Mar 11th, 2008 - 12:57 PM |
Re: When will it get better?
I have to agree on the praise music. There is one old song, not really a praise song, that has helped me so much through all of this. The name of the song is Hem of His Garment. When I am down and low with all that goes on with the endo I just sing this song and cry and let out all the pain and frustration that I feel and I keep singing it until I am feeling better. My mother sings it when her Lupus flares up as well, it has helped us both so much. If you'd like I could type up the lyrics for you. :) Take care hun! |
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Robin H
Mar 11th, 2008 - 4:24 PM |
Re: When will it get better?
Boy do I know the ups and downs! I wanted to chime in on the insurance. Have you had continuous group insurance coverage and just changed insurance companies or got a new job? If you have had continuous coverage, check with your state insurance commissioner. You can get a certificate of proof of your previous insurance coverage and might be able to have it covered as non-pre-existing. Typically, if you have had the insurance coverage and it's a group benefit, pre-existing conditions are covered. Here in Colorado you have to be covered for the 62 days prior to the new insurance. This usually applies to the group coverage. I'm not sure what the "rules" are if it is individual coverage. Also, did your insurance company issue an authorization for the surgery? If so, you might be able to force them to honor it. Praying that the insurance issues work out and that you feel better soon, Robin H |
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Melissa
Mar 11th, 2008 - 6:12 PM |
Re: When will it get better?
I too know the ups and downs very well! Praise God he is with us in both! I try and remind myself that he says in his word that he will never put more on us than we can handle. We must be stronger than we realize! I pray that I will learn to change the things I can change that need to be changed and to except the things I can't change and release everything to the lord. I love to listen to Jeremy Camp, etc I enjoy watching Joel Osteen or reading any of his books. He had a message on the other day about hope. Anyways, Ill keep you in my prayers! Melissa |
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BrandFam
Mar 13th, 2008 - 10:11 AM |
Re: When will it get better?
Thank you so much to all you ladies. I have taken your advice with listen to praise music. I downloaded a whole play list and titled it "Jesus". I can say that my state of mind is a lot better. I know that without God I could not get through the rough days. I feel so blessed to have found this site. My insurance company did pre approve the surgery. I paid my deductible and what the remaining balance was going to be. I am new to the company that I get insurance through and the insurance company said that the reason they turned down my claim is because my Endo is considered pre existing. I am working with a lawyer right now to go against the insurance companies ruling. Even if this was considered pre existing the clause in the policy is that I had to have insurance prior to having insurance through my current insurancce company. I did have insurance prior to this company. I am confident that something good will come out of this. Again ladies thank you so much for lifting my spirits and getting me off the pity pot that I was. Sometimes I just feel so alone, even though I know that I am not! God Bless! Lauren |
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