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Support for endometriosis sufferers
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| Viewing Page 1 of 1 (Total Posts: 6) |
| Author | Comment |
Nicole
 Apr 7, 08 - 4:56 PM |
I do have endo
Hi Ladies, I recently went to the doctors again. I went to one of the top docs in Boston. I have an internal ultrosound done. It came back normal and I thank God for that. Yet I still have cronic pelvic pain. My GYN put me on hormone therapy. She said she is 90% sure that I do have endo and that endo dose not show up in ultrosonds. My doc want to completly stop my fom getting my period. In hope to make me feel beter and so when I want to have chidlren I will be able to. Have any of you tried thsi before. And if so did it work for you. I continue to pray for you all God Bless!! |
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Sarah D.
Apr 7th, 2008 - 6:33 PM |
Re: I do have endo
Hi Nicole- As I read your post I was thinking how familiar it seems- the doctors have told me the exact same thing. But why don't they do a laparoscopy to find out if you do have endo 100% to be sure? You don't know how much endo you have, or what stage it is at, and it sounds like the hormone treatment is the only option the docs have given you. Doesn't that seem strange to you? It seemed fishy to me when the docs said all that. I tried the hormone route and it made me feel really whacky, and didn't stop the pain or ovulation, I still ovulated even on the pill and other treatments. I encourage you to find out more about your condition, and seek a treatment plan that will be very specific to your specific condition, since we are all very different. For myself and many other ladies here, the endo diet has worked wonders. You might not believe me when i say it, but sticking to a strict diet can turn everyhting around. I have tried SO many things, Nicole, and prayer, the diet and encouragement from friends and family is what has made the difference for me. Keep up the prayer, we all need it, and we'll be praying for you, too! Big hug, Sarah D. ps. look up the name of your hormone therapy and find out the side effects, what it depletes your body of, and success/failure rates it has with other women with endo... Even put it into the search box on this forum, you might be surprised!  
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Becky
Apr 7th, 2008 - 8:22 PM |
Re: I do have endo
Hi Nicole, I agree with the above post, check to see what kind of hormone therapy she put you on and then decide if that's something that you really want to do. Lupron has had lasting effects for me, even 3 1/2 years after taking it. It was NOT, NOT, NOT worth it for me. My doctor did the same thing, they think I have endo and then she put me on Lupron, without even having a diagnois. I still do not have a diagnosis but going back I would have done more research before going on Lupron. I had no idea what I was getting into, I just believed my doctor knew what was best. Have you gone to a specialist? Maybe a reproductive endocrinologist? They know more about endo than an obgyn. Good luck! Becky |
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Nettie
Apr 8th, 2008 - 10:32 AM |
Re: I do have endo
I agree with the other ladies. I would pray about finding a doctor that is a specialists in your area. If your doctor has diagnosed you with Endometreosis through your symptoms, and has offered Birth Control. It sounds more like a Band Aid. The only sure way to confirm if someone has Endometreosis is through Laproscopy. Of course we know our own bodies, but a certain confirmation needs to be made.Please Watch this video for a little confirmation. http://www.endocenter.org/endoflash_highspeed.htm Ask your Doctor: "Oh", Have you diagnosed me as having Endometreosis? Is Birth Control a proper way to diagnose Endometreosis? Have you properly diagnosed me? Sometimes We need to challange certain doctors. We need to do as much research as possible before we go into sergery because If through Laproscopy they do find the Endo, then they need to get it all out, and out the proper way through an Endo specialists. (Just speaking through experience) For doct. in your area go to.http://www.geocities.com/endovictims/endodocs.html May the Lord give you wisdom, and answers, love, Nettie |
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Allie
Apr 23rd, 2008 - 7:19 PM |
Re: I do have endo
Hi Nicole, I have endometriosis and i had a laporascopy in Sept. 08. Right after the surgery i was put on birth control with no placebos so i never will get my period again untill i want to try to have kids. Not having my period is so amazing. I use to get horrible horrible cramps and bleed like crazy. It took a couple months for my body to adjust but i don't get cramps anymore and i don't bleed. This eliminated much of my symptoms associated with endometriosis. I would definitley encourage you and all women who have horrible pains during their periods from endometriosis to do this also. Its great. Good luck to you. Allie |
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Allisyn
Apr 28th, 2008 - 9:57 AM |
Re: I do have endo
my doctor has done the same exact thing! She said that she was almost certain from my symptoms that I probably have endometriosis and she put me on Micronor for 3 months to see if it helps. I asked myself the question "Why cant she just do surgery to diagnose the problem before she puts me on drugs? " I am currently on the 2nd week of my 3 months of birth control therapy so I guess that I am going to stick this out and see... but I wish there was another way! lol |
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